Sorry for the delay in posting. Cris was released from the hospital August 29, and then we spent a few weeks at the Ronald McDonald House. We finally made it home by the middle of September!! Since he's been out, things have been kind of hectic. The first few weeks, he was taking so many medications, I had to use a spreadsheet to organize them. He has been on a high calorie, low microbial diet since August, which means that he has a ton of food restrictions. While we were staying at the Ronald McDonald house I actually had a hard time food shopping for him. The Upper East Side is very health conscious, so trying to find items that were not low fat/diet was a huge challenge.
He is doing really well now. His counts have started to recover on their own and he hasn't had to use recovery drugs since early September. If he continues this upward trend, he will be able to come off of his restrictions by the end of October and he will finally be able to eat whatever he wants (apples), go wherever he wants (the movie theater), and do what he wants to do (roller skating). It will make it easier to reach his daily calorie requirements when he is eating what he really wants to eat. In the month that he has been home, he has gained back 3 of the 10 pounds he lost during the transplant process. I don't know how he hasn't lost weight since he seems to have more energy than ever. He wakes up bright and early and never wants to go to sleep. I, on the other hand, am exhausted. Once he is able to go out and play with his cousins, I think (hope) he'll burn off some of his extra energy. I can't complain too much because when he is bouncing off the walls, I know he is feeling great. When he is tired and wants to lay down, I know there's a problem.
Things are slowly getting better. Thanks again for all of your love and support.
xoxo
Adina
P.S.- those of you who texted, emailed, messaged and called me and are still waiting for a response, I am very sorry it is taking me so long. It isn't personal, I just listened to voice mails from JUNE. I'm hoping to respond to all of you very soon.
