Typing with gloves is hard. So is trying to use a touch screen phone while wearing the aforementioned gloves. Sleeping with an isolation gown and mask isn't too much fun either. Just putting that out there.
We have some good news today...they ruled out infection and are now treating him for Engraftment Syndrome. This is common in Autologous Transplant patients despite the fact that they are receiving their own cells. Apparently it is a good thing because it shows that his immune system is beginning to recover (by reacting to these new cells). They started him on steroids (fun, fun, fun) and quickly realized that they had to lower the dose after he cursed out the Physical Therapist. I'm not going to lie, I was pretty amused by the episode. He called her a "Stupid freaking idiot" and told her to shut up because she was annoying him. I wonder where he got that from???? This chick turned to me, with the most priceless look on her face, and tried to explain that this was one of the side effects of the steroids. No Shit. This is his second time at bat. He took steroids for a few months last year, I've seen how the steroids affect him. I live with him. I have been his primary caregiver since he was first diagnosed over a year ago. Homegirl just met him last week and she was forcing him to do something he very clearly didn't want to do. I would have been pissed, too. Anyway, the steroids are working and his fever broke, his blood pressure is back to normal, and the rash is fading.Tomorrow they are inserting a new central line so that he won't have to worry about the IV's in his arms. Hopefully we can get out of the Observation Unit before his birthday on Friday.
Things are looking better =)
Adina
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